Hilliard resident and artist Dani Davis, who suffers from Ehlers-Danlos syndrome (EDS), will meet and greet people at a fundraising reception showcasing a collection of art that promotes awareness of this “invisible illness” at 8 p.m., May 18, at Kitamu Coffee. Local musicians will provide entertainment and attendees will have an opportunity to hear Davis’ story of coping with EDS. They can also donate money to help fund a new research and treatment center, the first of its kind in the world.
EDS is a disease affecting up to one in 5,000 people worldwide, in which connective tissues in the skin, joints and blood vessel walls become loose, causing painful dislocations. Skin bruises, tears and scars easily, and arteries and organs may rupture. Davis is bringing attention to the disease, with severity that can vary from mild to life-threatening, and has worked with Ohio Governor John Kasich on a proclamation to create May Ehlers-Danlos Syndrome Awareness Month.
Davis says she likes to be as green as possible when creating her art. “I repurpose a lot of materials and use them to create my pieces. Because I’m disabled and only able to create art for a few minutes a day, this project has taken a lot of time and effort, and was only able to come to fruition with patience and support from family and friends,” she advises.